Johannah S

Johannah is a recent Masters graduate, who enjoys researching ways in which to make the Events industry more accessible, and using Instagram to raise awareness of accessibility issues. She has runway and stills experience for many projects, including high street brands. Johannah is also an experienced performer, with a degree in Musical Theatre. She runs the Instagram account Chick With A Walking Stick to raise awareness of young people who use mobility aids. This was created when Johannah realised that for three years since becoming disabled, she had refused to be photographed with a mobility aid, and this had to change! She hopes that by being open with her mobility aid use, other young people won’t feel they have to hide theirs, as she used to, and she has been contacted by dozens of young people who have said that seeing her account has helped them. Johannah founded the business Invisible Illness Squad, which aims to bring pride and community to those with invisible illnesses. This has taken on a life of its own within the chronic illness community, and helps bring visibility to invisible conditions, and a sense of community to those who feel under represented. The ‘squad’ has so far delivered Invisible Illness Squad apparel to 12 different countries across the globe, showing that people who deal with chronic conditions aren’t as alone as they sometimes feel. Johannah has Joint hypermobility syndrome and mild scoliosis, leading to unstable joints and pain in moving. She often uses a walking stick and Powerchair to support her movement. Johannah loves using fashion and beauty to express herself, and enjoys relaxing skin care routines and fun makeup sessions before snapping pictures at home!